Saturday, February 27, 2010

Strange CCSVI Phenomenon

One MS sufferer who had been diagnosed with CCSVI (two "pancaked" or flattened lower jugulars and one slightly blocked upper jugular) by Dr. Dake in Stanford and was slated to be "liberated" in December until the Stanford procedures were shut down has a strange story to tell. Since he couldn't get the procedure done by Dr. Dake, he convinced an interventional radiologist to fix the lower jugulars with angioplasty on the basis that, regardless of possible impact on MS, blocked veins should be fixed.

However, when the radiologist tested him this time, several months after Dr. Dake's tests, the stenoses in the lower jugulars had disappeared (though the other slight stenosis in the upper jugular hadn't changed.  The radiologist was astounded and the patient (prof8) is asking others if they can think what this might mean.  Do veins sometimes open (and close) spontaneously - perhaps explaining RRMS?  Could a change in diet have produced this result? Are the small number of MS sufferers where no CCSVI is found simply cases where the veins opened up spontaneously (and perhaps temporarily) in the time for the test?

You can follow the discussion about this case tn the TiMS thread:

1 comment:

  1. I see this is an old entry. I'm prof8. I never did have my veins checked for CCSVI again. It's been 3 1/2 years and I still have mild MS (knock on wood).

    Tysabri is holding my disease at bay. The open veins during angioplasty procedure are still a mystery to me. Perhaps someone has figured this out now.

    PS: I'm a "she" not a "he"! :)