Friday, April 20, 2012

My MRI Results

I've finally received initial results from my MRI from my family doctor.  Several problems in my spine and spinal cord including areas of demyelinization and stenosis, but most if not all of those were not new and hadn't changed much since 2008.  There has been some additional growth of bony abnormalities on some vertebrae, including to the point where (as I understood it) at least a couple may almost be fusing, but that didn't seem to worry him too much.

What was both new (in terms of extent) and worrisome was the almost complete degeneration of the L2-L3 spinal disc.  That's probably the reason for my sore, stiff lower back... and leg spasms when I get out of bed or out of chairs.  When I asked him if that could be the cause of my recent decreasing mobility, he said he didn't know.  He did say that surgery for such problems is very rare, and they would have to be very sure that it truly was the cause of my mobility problems before they would do anything.  In other words, I'm probably going to have to live with it, with pain-killers and appropriate physio the best that modern medicine can do for me.

I hope that my neuro has something a little more encouraging for me when I see her after she gets back from her sick leave.

Sunday, April 15, 2012

First bike ride of 2012

I finally got out on the bike today - a gorgeous day.  It was a bit windy and there were lots of "Sunday walkers" - and dog walkers who weren't watching where they or their kids or dogs were going - but I made it, even though I had to do some sudden braking for them.  I guess my balance can't be that much worse than it was when I put away the bike last fall.

Paul, the Fampyra looks interesting ( if you get on it, let me know how it works for you.

Saturday, April 14, 2012

CCSVI: Three Years On

Here's a good blog posting by Wheelchair Kamikaze, summarizing where we are three years after CCSVI became know to few interested researchers and a nucleus of patients and caregivers who felt that the issue needed to be pursued:

Thursday, April 12, 2012

Impact so far?

It's well over a month now since I had my veins re-opened at the Synergy Clinic in California and, so far, I haven't really seen any impact of the procedure.  In the last six months or so I'd seen some slippage in my energy and balance symptoms and was hoping to get back all of the gains I saw after my trip to Poland (almost two years ago), but that doesn't appear to be happening.  In the meantime my mobility continues to deteriorate, though perhaps that is due to the arthritis that seems to be getting significantly worse these days.  Since I am on Pradax for three months (as a post-treatment "blood thinner"), I'm not allowed to take my arthritis medicine until that is over.  I'm still waiting to get to see a doc about my MRIs: could the osteoarthritis in my lower back be causing some of my walking problems?  It sure feels like it could be, but my neuro is on sick leave so it may take a while to find out for sure.

Thursday, April 5, 2012

New Course for Mobility Problems

Here`s some info about a course for MS folks around the Fredericton area that might help improve mobility:

Hello all, here is the course outline for a program that UNB (at the Currie Center) has developed in conjunction with the Stan Cassidy Center to assist in retraining the brain and hopefully recover some lost mobility functions.  If you are interested you can register by calling UNB URec at the numbers shown on the course description.  If you know of others that could benefit from such a program (such as stroke, MS, other neurological conditions) please forward this information to them.  Best regards and wishing you good health, Dianne Harriman.
A.X.O.N. – Advanced Exercise for Our Nerves
Spring 2012 Pilot Program

The AXON pilot program is a twice per week progressive program designed for those who are experiencing physical complications due to a neurological condition. Each day will include exercises that will help to build and/or maintain upper and lower body strength as well as balance. All exercises are led by Canadian Society of Exercise Physiology certified staff. Pre and post-testing is completed and is used as an objective measurement for improvement.
The AXON pilot program is adapted to meet the needs of each participant in a non-intimidating and encouraging environment. In order to be accepted into AXON, participants must be able to walk (with or without a walking aid), have the ability to verbally communicate, and have appropriate endurance to exercise at a light to moderate level for one hour. Participants will be asked to have their doctor fill out an AXON-specific PARmed-X prior to beginning the program.
Lead Instructors:
Dave Thomson, CEP
Alina Cress, CPT
Day/Time: Tuesdays & Thursdays, 2:00pm – 3:00pm
Next Session: May 15 – June 21, 2012
Cost: $70.00 members, $85.00 non-members