Friday, May 31, 2013
Chris has put together a well-researched open letter to the head of the Atlantic chapter of the MS Society of Canada: http://goo.gl/5VZRU. While I don't go out of my way to put down the MSSC, such as when they mention that they are going to do a "Walk for MS", when they do ask my opinion I do let them know that a) the MSSC has a very high proportion of administrative costs, b) that the MSSC has gone out of its way to be obstructive to the study of CCSVI treatement and c) that a good proportion of its money comes from drug companies and d) much of their non-administrative money goes towards testing drugs from these companies.
Thursday, May 23, 2013
While not all true for all MSers (so what is?), this diatribe will describe some of the feelings that hit most of us at some time: http://mstruths.blogspot.ca/2011/03/things-you-probably-dont-know-about.html. And take the time to read the comments.
Thursday, May 2, 2013
Here is a useful, well-reasoned article that explains why it makes good sense to believe that CCSVI may be causing some of our MS symptoms: see this NCS presentation. We do need more unbiased research and fewer articles that shoot down the CCSVI theory without providing any real evidence.
Wednesday, May 1, 2013
As usual, journalist Anne Kingston does a good job of putting the recent negative press CCSVI treatment has been getting into perspective: http://www2.macleans.ca/2013/05/01/ccsvi-dead-not-so-fast/.