I have not had any improvements and I can say that I have definitely had my MS progress. My walking is much poorer, my foot drop more pronounced, I fatigue much faster. On the other hand, I was getting worse when I went to Katowice and I think it would have been unreasonable to expect the procedure to put the brakes on and reverse my decline.
We had a long hot summer in Montreal, a very hard one for MSers. Now that the weather is cooling, I am feeling much better and there are days when I can walk much further. I very rarely use a cane (almost never) but once in awhile I put on my AFO and it helps with stamina.
I am feeling somewhat ambivalent about the procedure. I don't regret having it done, but I am not sure about recommending it to others anymore. I base this not just on my experience, but on what many others have voiced as well. Much to learn.
I'll be back in Katowice in October . I don't know what to expect - problems with my stent?... restonosed right jugular?... all ok?... If I am offered a stent in my right jugular, I have no idea right now if I would agree to it.
In the meantime - I am a fervent believer that there needs to be more research, clinical trials, and sooner not later. I am thoroughly disappointed in the Canadian MS Society, the Canadian Health Minister, and the countless neurologists who are not prepared to act as the doctors they trained to be.
Tuesday, September 14, 2010
Not everyone improves
Here is an excerpt from a message sent to me by someone who was liberated in Poland a few days before me: