- What is CCSVI? (Show different kinds of blockages, mention possibility of some of the more obscure ones)
- What is the evidence that CCSVI exists?
- What causes CCSVI?
- What, until recently, has been the generally accepted theory regarding the cause(s) of MS?
- What is the evidence that an overactive immune system causes MS?
- What is the new evidence that MS damage is not, initially at least, caused by an autoimmune reaction?
- What are the theories regarding the relationship of CCSVI to MS? (Poor blood flow [usually over a long period of time], blood pooling, hypoxia, inflammation, breach of the blood-brain barrier, iron deposits, demyelenization and CNS damage, then T-cells begin to appear [at first to clean up damaged cells, and then an immune system over-reaction].
- Is there evidence to back up these theories?
- How can CCSVI be diagnosed? (MRV, Doppler US and catheter venography – and explain how this is not a simple straight-forward test that can be done by people without special training)
- How can CCSVI be treated? (Diet? Drugs? “Liberation”?)
- What are the two main schools of thought regarding liberation? (stent, no-stent, the arguments for each side)
- Where can CCSVI be diagnosed, where can it be treated? Which of these can be considered “open” clinics where anyone (with the money) can go?
- Why (how) did I decide to go to Poland (Euromedic) for diagnosis and treatment, why did I feel (at the time) that seeking diagnosis in Canada was not worthwhile?
- What were my experiences with CCSVI diagnosis and treatment, with Euromedic and Poland? What did they do well, what could they have done better?
- What has changed for me since my treatment?
Wednesday, July 7, 2010
Outline for "CCSVI : A Lay Person’s Presentation for Lay People"
Here is the outline for the presentation I'll be making to a chapter of the MS Society. Please provide me with suggestions/criticisms concerning gaps, sources, etc. Remember, this should be a 20-30 minute presentation, leaving time for discussion.