Tuesday, June 29, 2010

CMAJ Editorial: Direct-MS response

Here is a response from Direct-MS to my last post that I copied as a new topic of discussion on TiMS:
The authors of the CMAJ editorial miss a number of key points probably because they know very little about the science of CCSVI. It is unfortunate they did not do their homework before writing their inadequate and somewhat naive editorial.
The current published scientific evidence leaves no doubt that CCSVI is closely associated with MS, that CCSVI precedes the MS disease process and that there are numerous, very plausible biological mechanisms which relate the effects of impaired venous flow (CCSVI) to the MS disease process. This science, in conjunction with the availability of a very safe, established procedure to resolve CCSVI is enough to justify treatment of CCSVI for anyone with MS.
Once you add the facts that it will be at least 8 years before the proper research is done (note current MSSOC research ending in 2012\13 just looks at the already established CCSVI/MS association and will add nothing new) and that many people will suffer major added disability in those 8+ years, it becomes ridiculous and basically barbaric to deny treatment.
The final problem is the gigantic conflict of interest that almost all MS neurologists have with an effective, vascular, non-drug treatment. The financial consequences of CCSVI treatment are dire for MS neurologists and this has led them to publicly claim CCSVI is a hoax and to lobby hard to stop any treatments and to ensure no useful research (i.e. treatment trials) is done by MSSOC. It appears the neurologists have persuaded the CMAJ editors to help them beat back the obvious need for CCSVI treatment. Such are the current politics of MS which are dominated by the financial health concerns of neurologists rather than the physical health concerns of patients.

1 comment:

  1. maggie.danhakl@healthline.comJune 16, 2014 at 2:12 AM


    Healthline just launched a video campaign for MS called "You've Got This" where individuals living with MS can record a short video to give hope and inspiration those recently diagnosed with MS.

    You can visit the homepage and check out videos from the campaign here: http://www.healthline.com/health/multiple-sclerosis/youve-got-this

    We will be donating $10 for every submitted campaign to the National MS Society, so the more exposure the campaign gets the more the videos we'll receive and the more Healthline can donate to MS research, support groups, treatment programs, and more.

    We would appreciate if you could help spread the word about this by sharing the You've Got This with friends and followers or include the campaign as a resource on your page: http://my-darn-ms.blogspot.com/2010/06/cmaj-editorial-direct-ms-response.html

    Please let me know if this is possible and if you have any questions. And, if you know anyone that would be interested in submitting a video, please encourage them to do so.

    Maggie Danhakl • Assistant Marketing Manager
    p: 415-281-3124 f: 415-281-3199

    Healthline • The Power of Intelligent Health
    660 Third Street, San Francisco, CA 94107
    www.healthline.com | @Healthline | @HealthlineCorp

    About Us: corp.healthline.com