Wednesday, January 13, 2010

Protocols to give to doctors

Here is some information that could be provided by MSers to interventional radiologists, vascular surgeons, neurologists and family doctors who are interested in learning more about diagnosing CCSVI.  If anyone knows of other or better links, please let me know.

Dr. Haacke's protocol for detecting CCSVI when using MRI/MRV:

Dr. Simka's protocol for Doppler Ultrasound is here: Simka Doppler protocol link and a paper describing the same here:

Another site is which contains the following info (perhaps including links to Zamboni's protocols):
What should I give my neurologist?
Last modified: 13.09.2009 - 08:35 CET
I would like to inform my neurologist about CCSVI. What should I give him or her?
We recommend you give your neurologist the following material:
  1. The PDF files of the bold written articles of
    should be printed (the PDF links are at the end of the line),
  2. the research foundation
    should be mentioned since there are all the important articles of Prof. Zamboni listed,
  3. and the information of the Bologna conference (08.09.2009)
    Program (PDF)
    Press release (Word)
    should be printed out.
Optionally, a link to this website could be added, as there are other important links listed and the site is regularly updated.
And a later addition (though perhaps a duplicate of other information):

What I don't have here yet is a nice, brief but clear summary of what CCSVI is and why it might be a primary cause of MS.  Can someone point me to their favorite summary? 

Sharon, a TiMS contributor, suggests:
The MSAA article written by Dr. Jack Burks is a very concise summary of CCSVI plus it is written by a well known and respected neurologist. I have suggested that folks use it, especially when going to their own neurologists.
Though it might be nice to have an objective article written by someone who recognizes that an MSer who is failing fast should perhaps not be dissuaded from having CCSVI assessment and intervention, this article should be quite useful, especially considering who it was written by.

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