Time does fly!!! This time last year I was anxiously waiting to hear Ted's results with CCSVI. I had already made up my mind that I was going to try CCSVI to see if it would help the disease which haunted me daily.
It has been nine months (soon to be ten) since I had my CCSVI treatment. I have had some significant gains in my balance, fatigue, and endurance. When the Physiotherapist tested my muscle strength before my Poland procedure my "bad" leg tested at 3-/5, now it is at 5/5. This may vary on weaker days. Now I have a limp and not a leg drag and only use my cane if I'm very fatigued. Before the procedure the cane was part of my daily outfit. I can count on one hand the times I have used my cane since last July!!!
I will share some of my proudest victories with you. For the first time in eight years I was able to go biking with my daughter, who is eight: she giggled and gave me pointers, while tears rolled down my eyes uncontrollably. I have played hop scotch, skipped, and tried ice skating (shuffling). I'm not saying all these were done with elegance and grace, but they were accomplished!!! I can stand and watch her play hockey if there is no seating. I have seen the puck go in the net and not have to ask if it was a goal. I can find her number and know it is her on the ice, where before I needed other parents to point her out. I have just returned from vacation where I walked around a cruise ship without my cane. I was able to walk to dinner every night with heels!!!! On previous vacations the end of the day left me being pushed to dinner "with no heels". I walked through the Halifax Air Port pushing my wheelchair, not "being pushed", which left a confused security officer, who asked, "who needed the chair? my husband or me !!". Liberation has not fixed everything but has improved my daily living a good 80 percent. I still run out of gas before the other mom's but go further before the tank is emptied. Liberation has brought a smile back to my face and gave me more quality time with my Daughter and Husband. Some may think this is insignificant but I believe that, "I found the Pot of Gold at the end of the Rainbow!!!!"
Liberated July 16, 2010
Wednesday, April 27, 2011
Melissa's story - almost 10 months
My friend Melissa was spurred to write to me when she realized from my blog that I was approaching one year since being treated. I asked her for an update that I could share with you and here it is: