- I have reported people who have seen no change on this blog. I wouldn't be surprised if a lot of the people who have seen no change are not reporting, but there is not much I can do about that and, as I mention below, I think it is appropriate for them to take a "wait and see" attitude because no improvements are not necessarily a bad thing at all.
- I have also talked about people having too high expectations, though most of my discussions with such people have been in private messages. I feel good about the small changes I've seen, but if I wanted to feel bad, all I'd have to do is focus on the stories of huge improvements a few people have reported.
- Nothing happening is not necessarily bad news at all. When I had my treatment, I went into it saying that NOTHING happening (no improvement, but no worsening) would be a big win for me. It is unfortunate that some people have unrealistic expectations based on anecdotes from a few lucky MSers, but since all we have are anecdotes and nobody in our health system is doing a survey of results (why not?!?), I'm only guessing that good results are being "over-reported".
Tuesday, August 31, 2010
Negative liberation stories
An anonymous commenter says "Funny that you only speak of the positive stories about ccsvi, how about those who had the procedure and it did not work!" and "When you speak so highly of ccsvi & the fantastic outcomes you make those who did have it done and it did not work feel like CRAP!". Of course, he/she meant speaking highly of CCSVI treatment. I would respond to those statements by saying that: