Tuesday, June 22, 2010

Dr. Sclafani's Proposed Trial Is Refused!

It looks like the anti-CCSVI cabal has won another round.  This was posted on TiMS today by the good doctor Sclafani himself (who was proposing to do testing and treatment in a clinical trial setting in the US):
NO!!!!
THE GOOD DOCTOR DID NOT GET APPROVED. THE GOOD DOCTOR GOT SHOT DOWN. I HAVE NOT RECEIVED THE OFFICIAL REJECTION BUT AMONG THE ISSUES THAT WERE RAISED AGSINST MY PROPOSAL WERE

1. AN OBSCURE GERMAN ABSTRACT REPORTING TEN PATIENTS THAT SHOWED NO ASSOCIATION BETWEEN CCSVI AND MS
2. A NEWLETTER OF SOME FORM STATING THAT ONLY RANDOMIZED TRIALS SHOULD BE PERFORMED.
3. THAT RANDOMIZED CONTROLLED STUDIES WERE ALREADY UNDERWAY IN BUFFALO. ANYONE KNOW ABOUT THAT?
4. THAT THE NATIONAL MS SOCIETY RECOMMENDED AGAINST TREATMENTS
5. THAT PATIENTS WERE BEING CHARGED FOR PROCEDURES. AND I HAD NO FUNDING
6. AND OF COURSE, THE WALL STREET JOUIRNAL TALKING ABOUT DAKES COMPLICATION AND DEATH

SORRY FOLKS, I AM REELING

I AM LOST RIGHT NOW.

I AM SPEAKING TO OTHERS WHO DO THE PROCEDURE TO SEE IF I CAN DO MY PATIENTS AT THEIR SITE.

I AM LOOKING FOR SOMEWHERE ELSE TO TREAT MY PATIENTS.

ANYBODY KNOW OF ANYONE INTERESTED IN INVESTING IN A PROCEDURE SITE?


SORRY TO ALL OF YOU. I AM SO UPSET
I am certain that there will be lots of MSers who are upset about this.  What a travesty!
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5 comments:

  1. ShelleyJune 22, 2010 at 4:19 PM

    This is beyond BAD news! Dr. Sclafani has been a champion, a warrior, a leader, and a hero for those with MS/CCSVI. He has given his heart to this cause and has been so interactive and communicative with MS sufferers for months on end as he answered questions and shared his insights. This is HEARTBREAKING!

    ReplyDelete
  2. ShelleyJune 22, 2010 at 4:35 PM

    And the National MS Society is recommending NOT to treat CCSVI???!!! Why???!!! Is it because a cure might cost them their jobs down the road while others gain their health back???!!! We need a CCSVI Society. It's time.

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  3. AnonymousJune 22, 2010 at 4:35 PM

    "THAT THE NATIONAL MS SOCIETY RECOMMENDED AGAINST TREATMENTS"

    Time to boycott the MS societies and put pressure on them to change their attitudes. Stop funding them. Cancel your checks and support for them. Spread the word! As bugs bunny might say "of course you realize this means war"...

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  4. AnonymousJune 22, 2010 at 4:50 PM

    Not surprising. The procedure (which i have had) challenges Big Pharma. This is corporate skulduggery at the Board-of-Directors level. Corruption in America. Nothing new.

    Thomas Richards, lawyer

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  5. AnonymousJune 26, 2010 at 12:35 AM

    CCSVI Alliance, a 501(c)(3) nonprofit is building a professional, nonprofit organization to help patients and medical professionals navigate the complex and ever-changing CCSVI landscape. Go to CCSVI.org for a hint of what's to come.

    ReplyDelete

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