Wednesday, December 7, 2011

Going to California in March

Well, enough of my symptoms have returned (somewhat) that I've decided to be re-assessed and then (if warranted) treated at Synergy Health in California.  Wanna guess what I'm doing during March Break?

Monday, December 5, 2011

Register on these mailing lists

If you are interested in MS and CCSVI breaking news, then I would strongly advise you to register on the mailing lists  for these sites:
There are, of course, many interesting ongoing discussion on CCSVI in the ThisIsMS.com site.  Being a "friend" or group member of the CCSVI in Multiple Sclerosis Facebook site will keep you in touch with a lot of the research and developments that are happening in the subject area.  As well, the Direct MS site, which used to focus on MS and diet, has now set its sights on bringing CCSVI research to Canada.
If you have any other sites that you feel I should include in this list, please let me know.

Tuesday, November 29, 2011

My letter to my MP regarding Bill C-280

This is what I sent:

Dear Minister Ashfield,
I am writing this message to ask you to please support Bill C-280, an Act to establish a national strategy for Chronic Cerebrospinal Venous Insufficiency (CCSVI).  While I appreciate that research takes time, I am worried that the current approach of the federal government regarding CCSVI research will result in minimal progress, too much expense and too much waiting for MSers across the country who need answers sooner rather than later.
If you want to send a message to your MP, get his e-mail address here: MPs' e-mail addresses.  Please send your message before Wednesday.

Abnormal Iron Content in MSers

More evidence backing up the CCSVI theory: http://www.ajnr.org/content/early/2011/11/24/ajnr.A2773.abstract

Saturday, November 19, 2011

Hansard extract - Kirsty Duncan

Here is Kirsty going to bat for us again, pushing the feds to stop wasting time (and MSers lives) and to get started on Phase II and Phase III trials NOW: Hansard comments.

Thursday, November 17, 2011

MS Society of Canada

OK, MSers, it's time to make yourself heard!  Due to a great drop in donations and sponsorships, the MS Society of Canada struck a renewal task force that has, so far, produced a first draft paper concerning Issues and Outcomes.  The MSSC would like MSers and those affected by MS to read the paper (at this link: Outcomes and Issues Paper) and then complete the survey at this link: http://www.surveymonkey.com/s/9HWMCZ8.

There may be reasons to be suspicious of the MSSC, but there ARE good people in the organization, and I think it is worth this effort to try to get it back on the right track.  Read the paper and take the survey, please.

Thursday, November 3, 2011

No Cure?

This pretty well describes what I believe the research to date says about MS, MS symptoms and CCSVI treatment: Joan Beal's Facebook article.