My letter to my MP regarding Bill C-280

This is what I sent:

Dear Minister Ashfield,

I am writing this message to ask you to please support Bill C-280, an Act to establish a national strategy for Chronic Cerebrospinal Venous Insufficiency (CCSVI).  While I appreciate that research takes time, I am worried that the current approach of the federal government regarding CCSVI research will result in minimal progress, too much expense and too much waiting for MSers across the country who need answers sooner rather than later.

If you want to send a message to your MP, get his e-mail address here: MPs' e-mail addresses.  Please send your message before Wednesday.

Abnormal Iron Content in MSers

More evidence backing up the CCSVI theory: http://www.ajnr.org/content/early/2011/11/24/ajnr.A2773.abstract

The Great Debate: CCSVI and MS

Good reading from the CCSVI Alliance: CCSVI Alliance article.

Hansard extract - Kirsty Duncan

Here is Kirsty going to bat for us again, pushing the feds to stop wasting time (and MSers lives) and to get started on Phase II and Phase III trials NOW: Hansard comments.

Innovative Protocol of Treatment for MS

This is interesting: http://www.news-releases.uiowa.edu/2011/November/111411MS_study.html?mid=52.

MS Society of Canada

OK, MSers, it's time to make yourself heard!  Due to a great drop in donations and sponsorships, the MS Society of Canada struck a renewal task force that has, so far, produced a first draft paper concerning Issues and Outcomes.  The MSSC would like MSers and those affected by MS to read the paper (at this link: Outcomes and Issues Paper) and then complete the survey at this link: http://www.surveymonkey.com/s/9HWMCZ8.

There may be reasons to be suspicious of the MSSC, but there ARE good people in the organization, and I think it is worth this effort to try to get it back on the right track.  Read the paper and take the survey, please.

No Cure?

This pretty well describes what I believe the research to date says about MS, MS symptoms and CCSVI treatment: Joan Beal's Facebook article.